Conference Program



Conference Program

Friday, November 13, 2020


Chat Rooms, Virtual Exhibitor Hall and Clinical Trial Fair

10:00 - 11:00am (ET)


Welcome
11:00 - 11:30am (ET)

Dave Fuehrer
Chief Executive Officer, GRYT Health, Cancer Survivor

Davide Piras
Senior Vice President, Worldwide Oncology, Bristol Myers Squibb

Davide will provide opening remarks discussing how, through a commitment to transforming lives and improving the world we live in, Bristol Myers Squibb is accelerating and expanding health equity and diversity and inclusion efforts on a global scale.

How I Found My Voice 
11:30am - 12:00pm (ET)

Benjamin Scheuer
Singer, Songwriter and Playwright of “The Lion”, Hodgkin’s Lymphoma Survivor

Enjoy a live musical performance and an interactive Q&A session with Benjamin Scheuer, singer, songwriter and playwright of “The Lion,” which chronicles his experience with Hodgkin’s Lymphoma as a young adult and how he used the experience to find and use his voice.

The Importance of Your Voice 
12:00 - 1:00pm (ET)

Dave Fuehrer 
Chief Executive Officer, GRYT Health, Cancer Survivor


Grace Abby Adan MPH, CHES
Doctoral Researcher University at Albany, Department of Health Policy, Management and Behavior

Jacqueline Daly
Secretary of Board, European Cancer Patient Coalition (ECPC), Director of Services, EGM Cancer Support

Liz Hiles
Bladder Cancer Survivor and GRYT Project Participant

K.T. Jones
Cancer Survivor and Patient Advocate 

More and more healthcare organizations are realizing the importance of including the patient perspective in the development of clinical trials and the subsequent use of approved therapies. However, not all patients know how to advocate for themselves to get into trials or how to report their burdens and unmet needs in a way that ensures they have continued access to care. This session brings together patients, advocacy organizations, and public health experts who have succeeded in making their voice heard or who have helped others to find their voice. Join us in learning from them what was effective and how you too can make a difference.

Concurrent Sessions:
How the Patient Voice Improves Trial Design 
1:00 - 2:00pm (ET)

Jim Howley 
Director, Global Advocacy, Hematology Bristol Myers Squibb

Elizabeth Franklin Ph.D., MSW
Executive Director, Cancer Policy Institute Cancer Support Community

Brian Lee
Director, Global Advocacy, CV, Fibrosis, MS and LCM, Bristol Myers Squibb

Deborah Maskens MA, MSM
Board Member, International Kidney Cancer Coalition, Co-Founder Kidney Cancer Canada, Kidney Cancer Survivor

Lorna Warwick
Chief Executive Officer, Lymphoma Coalition 

BMS’ PEER, the Patient Expert Engagement Resource, ensures that the patient perspective is heard and considered at every step in the drug discovery and development process — one of the first times such an all-encompassing approach has been implemented at a biopharmaceutical company. Join us to learn how to become an expert patient advocate and help build study protocols that take your experience into account!


Emotional Wellbeing and Resilience in the Face of Cancer
1:00 - 2:00pm (ET)

David Victorson Ph.D.
Co-Founder and Executive Director, True North Treks, Professor of Medical Social Sciences, Northwestern University, Associate Director of the Cancer Survivorship Institute, Robert H. Lurie Comprehensive Cancer Center

Patricia Goldsmith
Chief Executive Officer, CancerCare

Kelly Hendershot LMSW, LSW
Senior Director, Program Cancer Support Community

Amanda Kesler
Cancer Survivor 

Getting through cancer is messy. After your scars heal, how do you even start to put yourself back together emotionally? A relationship with the unexpected, cancer can cause a host of mental issues including anxiety, depression and even PTSD. While you are the expert of your own experience, no one can be expected to navigate cancer alone. Through identification of your needs, and individual or group support, however, emotional and mental hardships can be lessened. This session will discuss how the trauma of a cancer diagnosis and treatment can impact you and your caregivers emotionally and offer tangible resources to address ongoing issues of concern.


Concurrent Sessions:
Improving the Clinical Trial Experience
2:00 - 3:00pm (ET)

Annick de Bruin
Senior Director, Research Services Center for Information and Study on Clinical Research Participation (CISCRP)

Jessica Cronin
Project Manager, Research Services Center for Information and Study on Clinical Research Participation (CISCRP)

Sharon Hanlon
Director, Clinical Trial Engagement & Enrollment Bristol Myers Squibb

Study Connect is a Bristol Myers Squibb patient portal that facilitates greater awareness of the clinical trial experience and connects patients to studies in their area. Join us as we share learnings from a recent user experience exercise where we gathered feedback directly from cancer patients to help improve the portal.

Addressing Health Disparities Through the Eyes of The Patient
2:00 - 3:00pm (ET)

Linda Murakami
Amgen

Thomas A. Farrington
Founder and President, PHEN

Keith Crawford, MD, PhD

Director of Clinical Trials and Patient Education, PHEN

Rev. Tammie Denyse
President & Co-Founder, Carrie's TOUCH, Co-Principle, Project SOAR

Health care disparities span many barriers and affect multiple populations and diseases, including cancer. Cultural and societal determinants (i.e. geographic, income, etc.) influence access to care and are major determinants of healthcare disparity.

To overcome these barriers to healthcare, there is a need to improve healthcare awareness (patient literacy), improve access to care, reduce social determinants of disparity and build trust. Addressing these barriers can close the healthcare disparity gap crucial to improving healthcare and provider systems.

This session will focus on creative approaches to addressing and overcoming these barriers, including musical “info-entertainment” and artistic expression, and learning to speak from your own experience. Building trust with the medical community, learning truths about medical procedures and dispelling myths to overcome cultural biases are critical to improve preventative care and treatments.

Closing Remarks
3:00 - 3:10pm (ET)

Dave Fuehrer
Chief Executive Officer, Cancer Survivor, GRYT Health

Concurrent Entertainment
3:10 - 4:00pm (ET)

Therapeutic Yoga for Cancer Support
Tara Picklo

Enjoy some downtime in a mellow 45 minute therapeutic yoga for cancer support session. Join Tara (RTY500) from Lov Yoga (www.lov.yoga), as she teaches a yoga class for all levels of experience. Modifications will be offered so all can participate. We encourage you to do this practice to feel the community connection of the Global Virtual Cancer Conference as we breathe and move together. You can transition to a nice long savasana at any time as well!

Bollywood Dancing Made Easy
Jasmine Rana
Naika Desai

Join Jasmine and Naika as they lead you through a classic Bollywood routine that will get your blood pumping and energy flowing! After enjoying a choreographed performance, this session will teach attendees a number of classic Bollywood moves that anyone can do!

Demystifying Nutrition: How to Read Beyond the Labels
Krystle Zuniga Ph.D.,RD, LD

During an after treatment it is important to fuel your body with healthy foods. But with so many marketing terms used on food packages today like all natural, organic, preservative free, gluten free and GMO-free it is hard to know what it all means and if you are making a healthy choice. This session will break down the components of a nutrition facts label and explain the meaning of different health claims on food packages. Participants are asked to bring a food package to the session.



Adjourn
4:00pm (ET)

Virtual Watch Party of "To the Stranger Who Has Loved You"

8:00 - 9:30pm (ET)

Join True North Treks for a free, virtual screening of their short documentary film, To the Stranger Who Has Loved You, which closely follows young adult survivors Lindsey and Lizzie, and Lizzie's husband Justin, as they grapple in their own ways with the twists and turns of facing cancer as young adults. Each of them chose to go on a True North Trek where they would have opportunities to “find direction through connection” – connection with nature, connection with others who have traveled a similar path, and connection with themselves through mindful awareness practices. Stand in their hiking boots and paddle alongside them as they enter the wilderness of their lives and discover the power of finding and being found.

Saturday, November 14, 2020


Chat Rooms, Virtual Exhibitor Hall and Clinical Trial Fair

9:00 - 10:00am (ET)

Pre-Conference Session: Did Cancer Get Lost in COVID?
9:00 - 10:00am (ET)

Andy Spiegel
Executive Director, Global Colon Cancer Association, Chair, World Patient Alliance

Guy Boike M.D.
Director, Gynecologic Oncology McLaren Bay Hospital/Karmanos Cancer Institute

Mark Liu MHA
Director of Strategic Initiatives, Oncology, Mount Sinai Health System

During the height of COVID-19, many patients avoided regular check-up and appointments to minimize infection risks. Were you one of them? This session will feature the voices of physicians and advocates, as well as live patient, survivor and caregiver audience interaction, to discuss how best to bring patients back to the office for regular check-ups, screenings, diagnostic tests and ongoing cancer management in spite of COVID. Join us to lend your voice to creating a system after COVID that works for you!

Welcome | Keynote with Jim Kelly
10 - 11:00am (ET)

Dave Fuehrer
Chief Executive Officer, Cancer Survivor, GRYT Health

Jim Kelly

Pro Football Hall of Fame Quarterback, Buffalo Bills, Three-Time Oral Cancer Survivor

In a moderated Q&A session led by CEO of GRYT Health, Dave Fuehrer, Jim Kelly, Pro Football Hall of fame quarterback for the Buffalo Bills and three-time oral cancer survivor, will discuss his personal perseverance, journey through cancer and how he is using his voice to make a difference.


Concurrent Sessions

The Future of Cancer Treatment from the Patient Perspective
11:00am - 12:00pm (ET)

Dan Platt M.D.
Vice President, Patient Engagement and Research GRYT Health

Marc Fellous M.D.
Global Medical Affairs Head TRK Franchise Bayer Pharmaceuticals

Upal Basu Roy Ph.D., MPH
Executive Director of Research LUNGevity Foundation

Andrew Schorr
Co-Founder and President, Patient Power LLC

Susan Spinosa
Patient and Co-Founder NTRKers.org

Over the last 15 years, the cancer community has witnessed a revolution in cancer treatment. New understanding of the immune system’s role in fighting cancer, as well as the genetics of cancer, have led to the development of new immunotherapies and targeted therapies that have improved survivorship and changed the rules in this fight. Now, we are on the cusp of the next revolution in treatment with new, cell-based therapies, such as CAR-T, that offer the possibility of durable cures. Join us for a patient focused overview of these advances and a look at the future of cancer treatment from the patient perspective.

Survivorship: In Charge of Your Health
11:00am - 12:00pm (ET)

Nichole W. Owens
Chief Marketing Officer, GRYT Health, Breast Cancer Survivor

Suzanne Stone
Chief Strategic Solutions & Programs Officer, The Livestrong Foundation

Nikki Yuill MSSW, LCSW
Director, Information Resource Center, The Leukemia and Lymphoma Society

Some of us rush to get back to normal after treatment; others of us are so impacted by the trauma that it impedes on our daily life. Survivorship looks different for everyone, based on your cancer, treatment, ongoing therapies, chronic conditions, and personal circumstances like work, home and financial situations. In this interactive discussion, we will identify what a survivorship plan is and why it is important to have one. This session will also discuss how to make the most of survivorship and resources available to you to empower you to be in charge of your own health.

Lunch Break: Chat Rooms, Virtual Exhibitor Hall and Clinical Trial Fair
12:00pm - 1:00pm (ET)

Health Equity and Social Determinants of Health
1:00 - 2:00pm (ET)

Brad Love Ph.D.
Co-Founder and Research Advisor, GRYT Health

Claudia E. Begino MSW, LCSW
Supervisor, Case Management & Social Services, CHOC Children’s

Jason M. Dunn JD, MBA
Chief Operating Officer, Jordan Health

Kim M. Johnson M.D.
Senior Director, African American Health Equity Initiative, Susan G. Komen

The events of this year have brought the topic of health inequalities to the forefront of peoples' minds across the globe. We live in an era where technology has made healthcare more available than ever before, and yet we struggle to deliver fair and equitable care to those who most need it within our own populations. Now, we have a chance to reassess and correct the systemic misappropriation of resources in healthcare. What will we do with this opportunity? What steps need to be taken to eliminate disparities in access and treatment outcomes? Join us for a frank discussion of the issues and the path forward.

Concurrent Sessions

Prevention, Diagnosis and Me
2:00 - 3:00pm (ET)

Howard Brown
Board Director, Paltown Development Foundation, Stage IV Colon Cancer Survivor

Kristen Carbone
Founder and Chief Executive Officer, Brilliantly, Previvor

Jessica Valence
Vice President, Team Operations, GRYT Health, Cancer Survivor, PAL B Mutation


Dan Milner M.D., FASCP
Chief Medical Officer, American Society for Clinical Pathology (ASCP) 

Cancer can mean different things to different people. For some with strong family histories, they take decisive action to prevent cancer. For others with genetic mutations, they must be continually monitored because they are at high risk. Part of the reason that the cancer community is so tight-knit is that we share the grind of doctor’s appointments and trips to the lab and the knowledge that we are all under “surveillance.” But what do all those tests actually tell our oncologist? Join us to learn what all those screenings are for and to hear from the experts who go through it every day - patients like yourselves.

How to Use Your Voice
2:00 - 3:00pm (ET)

Sadhana Jackson M.D.
Tenure-Track investigator, Pediatric Neuro-Oncologist, National Institute of Neurological Disorders and Stroke, Thyroid Cancer Survivor

Minas Chryspoulo M.D., FACS
Breast Reconstruction Specialist and President, PRMA Plastic Surgery, Creator, The Breast Advocate App

Angie Giallourakis Ph.D.
Co-Founder, The Steven G. AYA Cancer Research Fund, Elephants and Tea

Tricia Hernandez MS
Senior Manager, Community Engagement, The Leukemia and Lymphoma Society

Susan Wysoki
Interim Executive Director Paltown Development Foundation

The power of your voice is real. By advocating for yourself or others, sharing your story and participating in research, you are empowering yourself to make an impact — improving quality of life and advancing science. In this interactive session, we will discuss different ways patients, survivors and caregivers can become advocates for themselves and the industry as a whole, learn about resources that are available to amplify your voice and hear from patients like you who are making a difference.

Increasing Patient Awareness Education and Collaboration
3:00 - 4:00pm (ET)
 

Cathy Traz (Trzaskawka)
Executive Director and Head, Global Advocacy, Bristol Myers Squibb

Jen McKee
Immuno-Oncology Product Specialist, Yervoy/Opdivo, Bristol Myers Squibb, Breast Cancer Survivor

Dave Fuehrer
Chief Executive Officer, GRYT Health, Cancer Survivor

Kawaldip Sehmi
Chief Executive Officer, International Alliance of Patient Organizations

Michael Wrigglesworth
Senior Director for Program Strategy and Data Solutions, Max Foundation

The COVID Advocacy Exchange offers support, resources, and collaboration to patients with chronic diseases and the advocates who aid them. Our goal is to maintain access to quality care during the pandemic. This session will bring together a patient, caregiver and advocate who have participated in the Exchange to authentically discuss the challenges that cancer patients face and how, through connection and collaboration, we have started to overcome those dilemmas together.

Closing Remarks and Networking Reception
4:00 - 5:00pm (ET)

Lauren Lastauskas
Program Director, GRYT Health, Cervical Cancer Survivor

During COVID, we are all struggling with a lack of personal connection. Join us for a relaxed and interactive networking session on Zoom to see your fellow patients, survivors and caregivers! Feel free to bring your choice of drink or snack as we celebrate the conclusion of GVCC20!


Adjourn

5:00pm (ET)